So we begin many test at the Spina Bifida clinic in April.
April 6th- CMG or cystometrogram This will be the test that tells us whether or not surgery is needed. They will be testing his bladder to see if there have been any significant changes since the last time that this same test was done, which was one year ago.
April 18th- CT Scan and MRI of the Spine. This test will be to determine if there are any cyst or other reasons for concern on the spine. Anytime a child has had a tethered cord, an CT Scan and MRI of the Spinal Cord will always then show that it is tethered so that is to be expected.
Also on the 18th... bone age scan This will show them at what age Karston will stop growing and exactly how tall he will be. Then they will be able to slow down the growth of his longer leg so that his shorter leg will catch up and he will once again be even. Yes, he will be shorter than he would if they didn't do this, but I believe it is well worth the inch to inch and a half that he would be shorter, just to be even.
Another test that will be done later is a Gait Analysis.
These pictures are of the brace or AFO that he has been wearing. We will also be picking up his new Etnies shoes that the Orthotist put a one inch lift inside the sole of the shoe. This will give our Chameleon more stability and balance. I will post new pictures when we get home and can hopefully show you the difference it will make for him.
April 6th- CMG or cystometrogram This will be the test that tells us whether or not surgery is needed. They will be testing his bladder to see if there have been any significant changes since the last time that this same test was done, which was one year ago.
April 18th- CT Scan and MRI of the Spine. This test will be to determine if there are any cyst or other reasons for concern on the spine. Anytime a child has had a tethered cord, an CT Scan and MRI of the Spinal Cord will always then show that it is tethered so that is to be expected.
Also on the 18th... bone age scan This will show them at what age Karston will stop growing and exactly how tall he will be. Then they will be able to slow down the growth of his longer leg so that his shorter leg will catch up and he will once again be even. Yes, he will be shorter than he would if they didn't do this, but I believe it is well worth the inch to inch and a half that he would be shorter, just to be even.
Another test that will be done later is a Gait Analysis.
At the moment I need to go and get ready to drive into the city to pick up Karston's newest AFO (Ankle Foot Orthothoses (orthosis = brace.)
These pictures are of the brace or AFO that he has been wearing. We will also be picking up his new Etnies shoes that the Orthotist put a one inch lift inside the sole of the shoe. This will give our Chameleon more stability and balance. I will post new pictures when we get home and can hopefully show you the difference it will make for him. 
No comments:
Post a Comment