Wednesday, June 22, 2011

Surgery Update...

So if you follow us on Facebook, then you probably are aware of our Chameleon's surgery details. Just in case I have readers that are not Facebook friends, allow me to fill you in on the happenings of the last month...

The surgery date was set for June the 15th. As the time quickly approached we were all working hard on getting ready physically and emotionally for the journey.

On May 27th we were able to take all of our amazing kids to Disney for a celebration vacation. We were celebrating two birthdays and for our Chameleon we were there for a last hoorah before a very slow Summer. We had so much fun and were so relaxed the entire time. We were all able to stay in the moment and just enjoy being together and having fun.
On the plane to Orlando I found myself humming a tune. I thought how nice it would be to have a theme song that would keep us relaxed and focused on what a great time we were having then instead of what will happen when we get home. I looked up the song that had been in my head and found that it was the perfect theme song for us. It was "Powerful Stuff" by Sean Hayes...
I sang this song anytime we were waiting for anything. Which we didn't really have to do much because we had gotten a wheelchair for our chameleon. By the end of the week, even my kids were singing this song, it was so helpful to all of us.

When we got home we started to get prepared. My mom came to town and we celebrated with a birthday party for Chameleon's brother. We also had a big backyard bbq with neighbors and friends. We had our pastor pray for Karston and his upcoming surgery.
Then two days before surgery was scheduled, Chameleon came down with a fever of 103 degrees in the middle of the night. It was a bit frightening and we contacted doctors as soon as possible. Sure enough the Surgery had to be rescheduled and test had to be done to find out if there was any kind of infection. The pediatrician put him on antibiotics right away and sent off for a urine test.

Two days later the test were all negative and most importantly Chameleon was all better. No more fever, he was playing outside and no longer in any kind of pain. Regardless the surgery had to be rescheduled and we were now in limbo and had little idea of what dates we would be looking at agian. There were a couple of dates tossed around, but the doctor's schedule was not really open until August and it was really up to her when it would be rescheduled for.

Just about a week went by and we were trying to make plans without knowing when our plans would be haulted with news of surgery. The call came today. The new date of surgery is July 20th. He will be in the hospital for 10days (approx. 'till July 30th) and then we will have 6 weeks at home of recovery with limited mobility.

So here we are again trying to get through the next couple of weeks, focusing on doing things as a family and making sure that we enjoy Summer activities as much as possible. We have three weeks to make plans and once again get prepared for what is ahead.

Our strength is in God. We know that He has a plan and that there must be a reason (that we may possibly never know) for having to postpone the surgery. This is all in God's hands and God's timing and we are learning every day to put our trust in Him. 

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